[kictanet] Sh4.7 billion health data technology in limbo

Thu Jul 5 10:24:15 EAT 2018

Jimmy
I understand the KNH data center is primarily for the purpose of storing radiology images and allowing remote viewing from the experts there; I am not sure it is necessarily supposed to hold all patient medical data for the whole country, though some form of medical data for the 98 hospitals is supposed to be part of the project.

Ali
Personally I think we need to be careful with Counties launching IT systems; otherwise you’ll have 47 data centers…. Certainly they need to have capacity, ownership, governance roles etc. There’s already too much duplication of different systems even within counties, let alone across counties, and national standards and systems are necessary.

Adam

From: kictanet [mailto:kictanet-bounces+adam.lane=huawei.com at lists.kictanet.or.ke] On Behalf Of Ali Hussein via kictanet
Sent: Thursday, July 05, 2018 9:03 AM
To: Adam Lane <adam.lane at huawei.com>
Cc: Ali Hussein <ali at hussein.me.ke>; KICTAnet ICT Policy Discussions <kictanet at lists.kictanet.or.ke>
Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo

Completely agree Jimmy.

Counties should anchor this initiative. I hope our Senators on the list are listening. :-)

Regards

Ali Hussein

Principal

AHK & Associates

Tel: +254 713 601113

Twitter: @AliHKassim

Skype: abu-jomo

LinkedIn: http://ke.linkedin.com/in/alihkassim

13th Floor , Delta Towers, Oracle Wing,

Chiromo Road, Westlands,

Nairobi, Kenya.

Any information of a personal nature expressed in this email are purely mine and do not necessarily reflect the official positions of the organizations that I work with.

On Thu, Jul 5, 2018 at 8:58 AM, JImmy Gitonga <jimmygitts at gmail.com<mailto:jimmygitts at gmail.com>> wrote:
Ali,

I left the iHub soon after and really never followed up on that. The IPRS launched much later. In my opinion, with devolution of health becoming a reality,  this system is now possible and it should be done in a "friendly" county first to iron out the system. Only then should it go national.

Making KNH the centre of the data store does not make sense. Health records are part of a person's personal information and it should be stored together. It would be easier for the owner to control it. Where should citizen information be kept?

Regards,

Jimmy Gitonga

Mobile: +254 722 740 883

Skype: jimmygitts | Twitter: @Afrowave

________________________________

P. O. Box 47910 00100

Nairobi Kenya

Web: afroshok.com<http://afroshok.com/>

On Thu, Jul 5, 2018 at 7:37 AM Ali Hussein <ali at hussein.me.ke<mailto:ali at hussein.me.ke>> wrote:
Jimmy

Amazing initiative. Any idea what came of it?

Regards

Ali Hussein

Principal

AHK & Associates

Tel: +254 713 601113

Twitter: @AliHKassim

Skype: abu-jomo

LinkedIn: http://ke.linkedin.com/in/alihkassim

13th Floor , Delta Towers, Oracle Wing,

Chiromo Road, Westlands,

Nairobi, Kenya.

Any information of a personal nature expressed in this email are purely mine and do not necessarily reflect the official positions of the organizations that I work with.

On Wed, Jul 4, 2018 at 8:01 PM, JImmy Gitonga via kictanet <kictanet at lists.kictanet.or.ke<mailto:kictanet at lists.kictanet.or.ke>> wrote:
When I was at the iHub in 2014, I used to host a lunch to discuss the possibility of patient/health service client information being portable.

We started the process by looking at why a user/client would need the information to be portable. With the disappearance of the family doctor and the proliferation of "supermarket medicine" with satellite clinics belonging to hospitals and health insurers "around the corner", the ability to move with your health information became relevant. There was also the issue of tracking HIV+ clients who would register multiple times at different clinics to receive ARV medication, where the second or more monthly dose was sold to willing buyers.

Answering the question, "who owns, controls, accesses, gives permission and uses what data and in what circumstances and for what purpose", The simple answer is the user. A lot of work had been done in this area. A company known as I-TECH has already built on Open Source Software solution known as the OpenEMRConnect<https://sites.google.com/site/oeckenya/> that was the seed to build a Health Information Exchange System (HIES).

As the iHub, we were to take this idea forward to concentrate on the User side of the platform. We proposed a system we called NINAFUU. NINAFUU would be a system that was to hold patient health data at the county level. The data would be collected from facilities across each county and submitted to the NINAFUU county node. This would be in line with the current DHIS system the Ministry of Health uses. We needed however was a system that would allow citizen/patient information to be exchanged on request from a particular facility or registered and practicing doctor.

The only sticking point then is we had to wait for the rolling out of the Integrate Population Registration Service (IPRS) in order to be able to generate Unique identifiers available at registration of birth in Kenya.

As far as I recall, we were exited by the possibilities of anonymised data for research and policy development especially if correlated with other data such rain patterns.

Regards,

Jimmy Gitonga

Mobile: +254 722 740 883

Skype: jimmygitts | Twitter: @Afrowave

________________________________

P. O. Box 47910 00100

Nairobi Kenya

Web: afroshok.com<http://afroshok.com/>

On Wed, Jul 4, 2018 at 11:43 AM <kictanet-request at lists.kictanet.or.ke<mailto:kictanet-request at lists.kictanet.or.ke>> wrote:

----------------------------------------------------------------------

Message: 1
Date: Wed, 4 Jul 2018 08:41:31 +0000
From: Adam Lane <adam.lane at huawei.com<mailto:adam.lane at huawei.com>>
To: Ali Hussein <ali at hussein.me.ke<mailto:ali at hussein.me.ke>>
Cc: "kictanet at lists.kictanet.or.ke<mailto:kictanet at lists.kictanet.or.ke>" <kictanet at lists.kictanet.or.ke<mailto:kictanet at lists.kictanet.or.ke>>
Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo

Ali

Aside from the data center hardware issue, you are right that the regulations are indeed very important. There needs to be clarity on who owns, controls, accesses, gives permission and uses what data and in what circumstances and for what purpose.. from the patients to local doctors to remote doctors to IT support staff to medical equipment management staff and beyond. I fully agree.

Adam

From: Ali Hussein [mailto:ali at hussein.me.ke<mailto:ali at hussein.me.ke>]
Sent: Wednesday, July 04, 2018 11:23 AM
To: Adam Lane <adam.lane at huawei.com<mailto:adam.lane at huawei.com>>
Cc: kictanet at lists.kictanet.or.ke<mailto:kictanet at lists.kictanet.or.ke>
Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo

Adam

Don't lose my point. It is super important. Under what law or regulation are we going to move around sensitive health data? This country needs to do a refresh and reboot and stop Procurement Driven tenders.

Ali Hussein

Principal

AHK & Associates

On Wed, Jul 4, 2018 at 10:42 AM, Adam Lane <adam.lane at huawei.com<mailto:adam.lane at huawei.com><mailto:adam.lane at huawei.com<mailto:adam.lane at huawei.com>>> wrote:
Hi Ali

I'm not sure I can comment on the data centre specifically, but I believe the project is much more than that. It is about the medical records software, servers and connectivity at the 98 hospitals so they can send radiology images to be viewed remotely (at KNH). The data centre at KNH would be to store images there and provide remote diagnosis.

Adam

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