[kictanet] Sh4.7 billion health data technology in limbo

Thu Jul 5 09:03:24 EAT 2018

Completely agree Jimmy.

Counties should anchor this initiative. I hope our Senators on the list are
listening. :-)

Regards

*Ali Hussein*

*Principal*

*AHK & Associates*

Tel: +254 713 601113

Twitter: @AliHKassim

Skype: abu-jomo

LinkedIn: http://ke.linkedin.com/in/alihkassim
<http://ke.linkedin.com/in/alihkassim>

13th Floor , Delta Towers, Oracle Wing,

Chiromo Road, Westlands,

Nairobi, Kenya.

Any information of a personal nature expressed in this email are purely
mine and do not necessarily reflect the official positions of the
organizations that I work with.

On Thu, Jul 5, 2018 at 8:58 AM, JImmy Gitonga <jimmygitts at gmail.com> wrote:

> Ali,
>
> I left the iHub soon after and really never followed up on that. The IPRS
> launched much later. In my opinion, with devolution of health becoming a
> reality,  this system is now possible and it should be done in a "friendly"
> county first to iron out the system. Only then should it go national.
>
> Making KNH the centre of the data store does not make sense. Health
> records are part of a person's personal information and it should be stored
> together. It would be easier for the owner to control it. Where should
> citizen information be kept?
>
> Regards,
>
> *Jimmy Gitonga*
>
>
> *Mobile:* +254 722 740 883
>
> *Skype:* jimmygitts | *Twitter:* @Afrowave
>
> ________________________________
>
>
> P. O. Box 47910 00100
>
> Nairobi Kenya
>
> *Web*: afroshok.com
>
>
> On Thu, Jul 5, 2018 at 7:37 AM Ali Hussein <ali at hussein.me.ke> wrote:
>
>> Jimmy
>>
>> Amazing initiative. Any idea what came of it?
>>
>> Regards
>>
>> *Ali Hussein*
>>
>> *Principal*
>>
>> *AHK & Associates*
>>
>>
>>
>> Tel: +254 713 601113
>>
>> Twitter: @AliHKassim
>>
>> Skype: abu-jomo
>>
>> LinkedIn: http://ke.linkedin.com/in/alihkassim
>> <http://ke.linkedin.com/in/alihkassim>
>>
>>
>> 13th Floor , Delta Towers, Oracle Wing,
>>
>> Chiromo Road, Westlands,
>>
>> Nairobi, Kenya.
>>
>> Any information of a personal nature expressed in this email are purely
>> mine and do not necessarily reflect the official positions of the
>> organizations that I work with.
>>
>> On Wed, Jul 4, 2018 at 8:01 PM, JImmy Gitonga via kictanet <
>> kictanet at lists.kictanet.or.ke> wrote:
>>
>>> When I was at the iHub in 2014, I used to host a lunch to discuss the
>>> possibility of patient/health service client information being portable.
>>>
>>> We started the process by looking at why a user/client would need the
>>> information to be portable. With the disappearance of the family doctor and
>>> the proliferation of "supermarket medicine" with satellite clinics
>>> belonging to hospitals and health insurers "around the corner", the ability
>>> to move with your health information became relevant. There was also the
>>> issue of tracking HIV+ clients who would register multiple times at
>>> different clinics to receive ARV medication, where the second or more
>>> monthly dose was sold to willing buyers.
>>>
>>> Answering the question, "who owns, controls, accesses, gives permission
>>> and uses what data and in what circumstances and for what purpose", The
>>> simple answer is the user. A lot of work had been done in this area. A
>>> company known as I-TECH has already built on Open Source Software
>>> solution known as the OpenEMRConnect
>>> <https://sites.google.com/site/oeckenya/> that was the seed to build
>>> a Health Information Exchange System (HIES).
>>>
>>> As the iHub, we were to take this idea forward to concentrate on the
>>> User side of the platform. We proposed a system we called NINAFUU. NINAFUU
>>> would be a system that was to hold patient health data at the county level.
>>> The data would be collected from facilities across each county and
>>> submitted to the NINAFUU county node. This would be in line with the
>>> current DHIS system the Ministry of Health uses. We needed however was a
>>> system that would allow citizen/patient information to be exchanged on
>>> request from a particular facility or registered and practicing doctor.
>>>
>>> The only sticking point then is we had to wait for the rolling out of
>>> the Integrate Population Registration Service (IPRS) in order to be
>>> able to generate Unique identifiers available at registration of birth in
>>> Kenya.
>>>
>>> As far as I recall, we were exited by the possibilities of anonymised
>>> data for research and policy development especially if correlated with
>>> other data such rain patterns.
>>>
>>> Regards,
>>>
>>> *Jimmy Gitonga*
>>>
>>>
>>> *Mobile:* +254 722 740 883
>>>
>>> *Skype:* jimmygitts | *Twitter:* @Afrowave
>>>
>>> ________________________________
>>>
>>>
>>> P. O. Box 47910 00100
>>>
>>> Nairobi Kenya
>>>
>>> *Web*: afroshok.com
>>>
>>>
>>> On Wed, Jul 4, 2018 at 11:43 AM <kictanet-request at lists.kictanet.or.ke>
>>> wrote:
>>>
>>>>
>>>> ----------------------------------------------------------------------
>>>>
>>>> Message: 1
>>>> Date: Wed, 4 Jul 2018 08:41:31 +0000
>>>> From: Adam Lane <adam.lane at huawei.com>
>>>> To: Ali Hussein <ali at hussein.me.ke>
>>>> Cc: "kictanet at lists.kictanet.or.ke" <kictanet at lists.kictanet.or.ke>
>>>> Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo
>>>>
>>>> Ali
>>>>
>>>> Aside from the data center hardware issue, you are right that the
>>>> regulations are indeed very important. There needs to be clarity on who
>>>> owns, controls, accesses, gives permission and uses what data and in what
>>>> circumstances and for what purpose.. from the patients to local doctors to
>>>> remote doctors to IT support staff to medical equipment management staff
>>>> and beyond. I fully agree.
>>>>
>>>> Adam
>>>>
>>>> From: Ali Hussein [mailto:ali at hussein.me.ke]
>>>> Sent: Wednesday, July 04, 2018 11:23 AM
>>>> To: Adam Lane <adam.lane at huawei.com>
>>>> Cc: kictanet at lists.kictanet.or.ke
>>>> Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo
>>>>
>>>> Adam
>>>>
>>>> Don't lose my point. It is super important. Under what law or
>>>> regulation are we going to move around sensitive health data? This country
>>>> needs to do a refresh and reboot and stop Procurement Driven tenders.
>>>>
>>>>
>>>> Ali Hussein
>>>>
>>>> Principal
>>>>
>>>> AHK & Associates
>>>>
>>>> On Wed, Jul 4, 2018 at 10:42 AM, Adam Lane <adam.lane at huawei.com
>>>> <mailto:adam.lane at huawei.com>> wrote:
>>>> Hi Ali
>>>>
>>>> I'm not sure I can comment on the data centre specifically, but I
>>>> believe the project is much more than that. It is about the medical records
>>>> software, servers and connectivity at the 98 hospitals so they can send
>>>> radiology images to be viewed remotely (at KNH). The data centre at KNH
>>>> would be to store images there and provide remote diagnosis.
>>>>
>>>> Adam
>>>
>>>
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