[kictanet] Sh4.7 billion health data technology in limbo

[JImmy Gitonga]

When I was at the iHub in 2014, I used to host a lunch to discuss the
possibility of patient/health service client information being portable.

We started the process by looking at why a user/client would need the
information to be portable. With the disappearance of the family doctor and
the proliferation of "supermarket medicine" with satellite clinics
belonging to hospitals and health insurers "around the corner", the ability
to move with your health information became relevant. There was also the
issue of tracking HIV+ clients who would register multiple times at
different clinics to receive ARV medication, where the second or more
monthly dose was sold to willing buyers.

Answering the question, "who owns, controls, accesses, gives permission and
uses what data and in what circumstances and for what purpose", The simple
answer is the user. A lot of work had been done in this area. A company
known as I-TECH has already built on Open Source Software solution known as
the OpenEMRConnect <https://sites.google.com/site/oeckenya/> that was the
seed to build a Health Information Exchange System (HIES).

As the iHub, we were to take this idea forward to concentrate on the User
side of the platform. We proposed a system we called NINAFUU. NINAFUU would
be a system that was to hold patient health data at the county level. The
data would be collected from facilities across each county and submitted to
the NINAFUU county node. This would be in line with the current DHIS system
the Ministry of Health uses. We needed however was a system that would
allow citizen/patient information to be exchanged on request from a
particular facility or registered and practicing doctor.

The only sticking point then is we had to wait for the rolling out of
the Integrate
Population Registration Service (IPRS) in order to be able to generate
Unique identifiers available at registration of birth in Kenya.

As far as I recall, we were exited by the possibilities of anonymised data
for research and policy development especially if correlated with other
data such rain patterns.

Regards,

*Jimmy Gitonga*


*Mobile:* +254 722 740 883

*Skype:* jimmygitts | *Twitter:* @Afrowave

________________________________


P. O. Box 47910 00100

Nairobi Kenya

*Web*: afroshok.com


On Wed, Jul 4, 2018 at 11:43 AM <kictanet-request at lists.kictanet.or.ke>
wrote:

>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Wed, 4 Jul 2018 08:41:31 +0000
> From: Adam Lane <adam.lane at huawei.com>
> To: Ali Hussein <ali at hussein.me.ke>
> Cc: "kictanet at lists.kictanet.or.ke" <kictanet at lists.kictanet.or.ke>
> Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo
>
> Ali
>
> Aside from the data center hardware issue, you are right that the
> regulations are indeed very important. There needs to be clarity on who
> owns, controls, accesses, gives permission and uses what data and in what
> circumstances and for what purpose.. from the patients to local doctors to
> remote doctors to IT support staff to medical equipment management staff
> and beyond. I fully agree.
>
> Adam
>
> From: Ali Hussein [mailto:ali at hussein.me.ke]
> Sent: Wednesday, July 04, 2018 11:23 AM
> To: Adam Lane <adam.lane at huawei.com>
> Cc: kictanet at lists.kictanet.or.ke
> Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo
>
> Adam
>
> Don't lose my point. It is super important. Under what law or regulation
> are we going to move around sensitive health data? This country needs to do
> a refresh and reboot and stop Procurement Driven tenders.
>
>
> Ali Hussein
>
> Principal
>
> AHK & Associates
>
> On Wed, Jul 4, 2018 at 10:42 AM, Adam Lane <adam.lane at huawei.com<mailto:
> adam.lane at huawei.com>> wrote:
> Hi Ali
>
> I'm not sure I can comment on the data centre specifically, but I believe
> the project is much more than that. It is about the medical records
> software, servers and connectivity at the 98 hospitals so they can send
> radiology images to be viewed remotely (at KNH). The data centre at KNH
> would be to store images there and provide remote diagnosis.
>
> Adam
>
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