<div dir="ltr">When I was at the iHub in 2014, I used to host a lunch to discuss the possibility of patient/health service client information being portable.<div><br></div><div>We started the process by looking at why a user/client would need the information to be portable. With the disappearance of the family doctor and the proliferation of "supermarket medicine" with satellite clinics belonging to hospitals and health insurers "around the corner", the ability to move with your health information became relevant. There was also the issue of tracking HIV+ clients who would register multiple times at different clinics to receive ARV medication, where the second or more monthly dose was sold to willing buyers.<br><div><br></div><div>Answering the question, "<span style="font-size:small;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline">who owns, controls, accesses, gives permission and uses what data and in what circumstances and for what purpose", The simple answer is the user. A lot of work had been done in this area. A company known as <span style="font-family:Verdana;font-size:13px">I-TECH</span><span class="gmail-Apple-converted-space" style="font-family:Verdana;font-size:13px"> has already built on Open Source Software solution known as the <a href="https://sites.google.com/site/oeckenya/">OpenEMRConnect</a> that was the seed to build a Health Information Exchange System (HIES). </span></span></div><div><span style="font-size:small;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline"><span class="gmail-Apple-converted-space" style="font-family:Verdana;font-size:13px"><br></span></span></div><div><span style="font-size:small;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline"><span class="gmail-Apple-converted-space" style="font-family:Verdana;font-size:13px">As the iHub, we were to take this idea forward to concentrate on the User side of the platform. We proposed a system we called NINAFUU. NINAFUU would be a system that was to hold patient health data at the county level. The data would be collected from facilities across each county and submitted to the <span style="background-color:rgb(255,255,255);text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline">NINAFUU county node</span>. This would be in line with the current DHIS system the Ministry of Health uses. We needed however was a system that would allow citizen/patient information to be exchanged on request from a particular facility or registered and practicing doctor. <br>
<br>
</span>The only sticking point then is we had to wait for the rolling out of the <span style="font-family:"PT Sans";font-size:13px">Integrate Population Registration Service (IPRS) in order to be able to generate Unique identifiers available at registration of birth in Kenya.<br></span><br>As far as I recall, we were exited by the possibilities of anonymised data for research and policy development especially if correlated with other data such rain patterns.<br>
<br>
</span>
<span></span>
<p class="gmail-p1" style="margin:0px;font-variant-numeric:normal;font-variant-east-asian:normal;font-weight:normal;font-stretch:normal;font-size:12px;line-height:normal;font-family:Helvetica;color:rgb(68,26,15)"><span class="gmail-s1" style="font-kerning:none">Regards,</span></p>
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<br><br><div class="gmail_quote"><div dir="ltr">On Wed, Jul 4, 2018 at 11:43 AM <<a href="mailto:kictanet-request@lists.kictanet.or.ke">kictanet-request@lists.kictanet.or.ke</a>> wrote:<br></div><blockquote class="gmail_quote" style="margin:0px 0px 0px 0.8ex;border-left:1px solid rgb(204,204,204);padding-left:1ex"><br>
----------------------------------------------------------------------<br>
<br>
Message: 1<br>
Date: Wed, 4 Jul 2018 08:41:31 +0000<br>
From: Adam Lane <<a href="mailto:adam.lane@huawei.com" target="_blank">adam.lane@huawei.com</a>><br>
To: Ali Hussein <<a href="mailto:ali@hussein.me.ke" target="_blank">ali@hussein.me.ke</a>><br>
Cc: "<a href="mailto:kictanet@lists.kictanet.or.ke" target="_blank">kictanet@lists.kictanet.or.ke</a>" <<a href="mailto:kictanet@lists.kictanet.or.ke" target="_blank">kictanet@lists.kictanet.or.ke</a>><br>
Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo<br><br>
Ali<br>
<br>
Aside from the data center hardware issue, you are right that the regulations are indeed very important. There needs to be clarity on who owns, controls, accesses, gives permission and uses what data and in what circumstances and for what purpose.. from the patients to local doctors to remote doctors to IT support staff to medical equipment management staff and beyond. I fully agree.<br>
<br>
Adam<br>
<br>
From: Ali Hussein [mailto:<a href="mailto:ali@hussein.me.ke" target="_blank">ali@hussein.me.ke</a>]<br>
Sent: Wednesday, July 04, 2018 11:23 AM<br>
To: Adam Lane <<a href="mailto:adam.lane@huawei.com" target="_blank">adam.lane@huawei.com</a>><br>
Cc: <a href="mailto:kictanet@lists.kictanet.or.ke" target="_blank">kictanet@lists.kictanet.or.ke</a><br>
Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo<br>
<br>
Adam<br>
<br>
Don't lose my point. It is super important. Under what law or regulation are we going to move around sensitive health data? This country needs to do a refresh and reboot and stop Procurement Driven tenders.<br>
<br>
<br>
Ali Hussein<br>
<br>
Principal<br>
<br>
AHK & Associates<br>
<br>On Wed, Jul 4, 2018 at 10:42 AM, Adam Lane <<a href="mailto:adam.lane@huawei.com" target="_blank">adam.lane@huawei.com</a><mailto:<a href="mailto:adam.lane@huawei.com" target="_blank">adam.lane@huawei.com</a>>> wrote:<br>
Hi Ali<br>
<br>
I'm not sure I can comment on the data centre specifically, but I believe the project is much more than that. It is about the medical records software, servers and connectivity at the 98 hospitals so they can send radiology images to be viewed remotely (at KNH). The data centre at KNH would be to store images there and provide remote diagnosis.<br>
<br>
Adam<br>
</blockquote></div></div></div></div>